For the Love of Gigs

Hello, you!   I don’t know whether you do too, but I bloody love gigs. Music runs in my family (I can hear my best friend saying the ‘no one runs in your family’ joke right now) and I’ve grown up surrounded by it so gigs hold a lot of value for me – some people prioritise having extravagant possessions, but for me, life is all about experiences. It all started at the youthful age of 9 where I attended my first concert – wait for it… Pussycat Dolls and Rihanna on their joint tour. I remember being rather amused when they kept filming Rihanna’s bum to put on the big screens – thinking about it now, it was quite an odd thing to do given that the majority of the audience would probably have been female and whilst we can all appreciate a good GIRL CRUSH, it wasn’t really what we went to see. Anyway, I digress… Baby me cried at feeling the bass in my chest (very autistic of me) because I didn’t understand what it was, but once I knew it wasn’t hurting me, I couldn’t get enough of it! Fast forward 11 years and I think… View Post

Tales of Two Adventures

HELLO, YOU! I feel we needed a capitalised greeting given it’s been such a bloody long time since I posted anything on here. I’ve been having a FAB summer, with lots of adventures, which has been so lovely after all the shitty illness and surgery stuff – it’s been busy! After my last blog post, I went to Cuba; I’ve wanted to go there since I was about sixteen so I felt VERY lucky to finally have the opportunity to. My favourite thing about the place was unquestionably the people – as Cuba is such a poor country, lots of the citizens don’t have a lot of money but they have SO much spirit. We spoke to lots of staff at the hotel, all of whom had to travel two hours every day to get to and from work, many worked two jobs and had very limited time off because they wanted to make as much money for their family as possible. A tour guide told me that doctors there make around $35 (USD) per MONTH, which is about £26. Everything is mad expensive out there because almost everything has to be imported, so the citizens can’t really afford much.… View Post

To thirteen year old me…

To thirteen year old me,   You’ve just turned thirteen and you’ve stopped sleeping. Let me tell you, kid, this is the start of a very long road, you’ve got five years of illness ahead of you, so buckle up. You’ll have a sleeping disorder for two years, no sedatives will knock you out and box sets will become your best friend. The night can be a lonely place but you’ll get through it, you’ll be awake to see the sun rise, so trust that at the end of the darkness there is always light. Just as you start sleeping properly again you’re going to get hit by chronic pain. You’ll be in hospital six times within two months and the doctors won’t know what causes it; they work it out eventually, keep going. You’ll be loaded up to your eyes on painkillers and experience treatments so agonising you can’t even comprehend the pain and the pain will still be there, but you’ve got to carry on. While this is going on, you’re going to lose the most monumental man you’ve ever known and the pain of it will break you to the point where you feel like you can’t… View Post